Deaf-Blindness Blogs

Actual News - Blog by Dr. Jan van Dijk

http://www.drjanvandijk.org/actual-news
Dr. Jan van Dijk, expert in deafblindness, assessment, syndromes and challenging behaviours, shares his deafblind knowledge via articles, videos, actual news (weblog) and a forum.

Deaf-Blind Services Network

http://deafblindnetworks.blogspot.com
An informal platform for dialogue, conversation, and sharing among the OSEP funded Deaf-Blind Network of Projects and its partners.

California Deaf-Blind Services

http://www.cadbs.org
Staff from the state project offer perspectives and info

Usher Syndrome Blog

http://ushersyndromeblog.blogspot.com
Mark Dunning and Jennifer Phillips from the Coalition for Usher Syndrome Research post up to date and thoughtful information about Usher Syndrome.

Tactile the World

http://tactiletheworld.wordpress.com
Christine Amanda Roschaert, a young woman with Usher Syndrome, on her life with commentary on current events

Mom on a Mission

http://momonamissionblog.blogspot.com/2008_01_01_archive.html
Mother Michelle Westmaas writes about life with her daughter, Katie, who has CHARGE

Kaufmann Family Blog

http://kauffmanlak.blogspot.com
The Kaufmann family posts stories about life with Katie, their daughter with CHARGE Syndrome.

Kinnick and Carver Family Blog

http://kinnickandcarver.blogspot.com
The family of Kinnick and Carver blog about their twins born at 23 weeks in 2007. Carver is deaf-blind and is learning to use his cochlear implant.

The DeafBlind's Musing

http://thedeafblindsmusing.blogspot.com
Life through the eyes and hands of a DeafBlind person. Open to persons interested in signing up.

AADB blogs

http://aadb.org/information/ssp/ssp.html#story
People post stories and testimonials about the value of access to SSPs

Helen Keller Fellows Cohort #3 Blog

http://www.helenkellerfellowshipcohort3.blogspot.com
Helen Keller Fellows discuss their experiences as fellowship recipients from different programs across the country.

eXploring Tech Blog

Larry Edelman shares resources and perspectives on the use of technology
http://exploringtech.wordpress.com

White House Blog: Disabilities

Follow postings covering disability issues at the federal level
http://www.whitehouse.gov/blog/issues/Disabilities

I Won't Wear Grey

This blog is written by a mother whose daughter who was born with Wolf-Hirschhorn Syndrome (WHS ) in Oct 2010.
http://iwontweargrey.blogspot.com

 

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