National Family Association for Deaf-Blind – NFADB
This national network of families provides parent to parent networking, a family listserv, training for families, and advocates and participates on the national level on behalf of families. A board of directors and an affiliate program help to direct the organizations goals and future direction.
CHARGE Syndrome Foundation
The CHARGE Syndrome Foundation is a formidable resource for families or individuals with CHARGE syndrome and the professionals who work with them. They provide parent to parent networking, organize an international conference, disseminate information and stay at the forefront of developing medical and educational information. A Board of Directors and a Director of Outreach position help to support, inform and connect families.
National CHARGE Support & National Usher Support
The New York Deaf-Blind Collaborative uses teleconferencing to provide support to families. Through group conference calls conducted in Spanish, families share their concerns, exchange information and strategies, resulting in increased community and support for culturally diverse families.
(718) 997 4855
See list of Teleconference Dates
Project SPARKLE supports families by providing information and training that can be accessed in their home at any time and provides a vehicle for applying information learned directly to their children. Participation and support is provided by state deaf-blind projects and 25 states across the country are implementing the program.