News and Announcements
News
Tactile Rap - DB Awareness Week
Watch this rap battle between hands rapping about senses using the deafblind tactile sign language. On Youtube.
New Website for DB Cochlear Implant Study
Children Who are Deaf-Blind with Cochlear Implants research study has launched a new website. Check out the most recent findings and parent/family stories.
Research Participation Opportunity for Adolescents and Adults with CHARGE Syndrome: Quality of Life and Ongoing Medical Issues
If you are 13 years or older and have CHARGE syndrome, you and/or your parent or guardian are invited to participate in a research study. Little is known about the problems people have as they are growing up with CHARGE syndrome. To learn more, this study is asking adolescents and adults with CHARGE syndrome to complete a questionnaire. The questionnaire includes questions about the past and present life experiences of people who have CHARGE syndrome and takes approximately 30 to 45 minutes to fill out. Some of the questions are about things that are good in life and some are about things that are not so good. This is described as “quality of life.”
This research study is being conducted by a medical doctor, Dr. Kim Blake, and a psychologist, Dr. Nancy Salem-Hartshorne, who has an adolescent son with CHARGE syndrome. If you volunteer to participate, a packet will be sent to you with consent forms and the questionnaire. Please contact the researchers via email or telephone if you would like to be part of this important research.
Nancy Hartshorne: harts1ns@cmich.edu (989) 774-6469 (Eastern Time Zone)
Dr. Kim Blake: kblake@dal.ca (902) 470-6499 (Atlantic Standard Time)
Accessible Science Webcast and Pilot Website
Perkins Training and Educational Resources Program is proud to present our latest on-demand educational webcast on Accessible Science. This webcast is part of a series and goes along with a pilot website focused exclusively on making science accessible to students who are visually impaired. Visit the website here: http://www.perkins.org/whatsnew/accessible-science.html