People & Programs | Electronic Discussion Groups
Electronic Discussion Groups
To review lists hosted on our server, please visit http://www.tr.wou.edu/archives
CHARGE Listserv
Website: http://tinyurl.com/6ddyycList owner
CHARGE-owner@yahoogroups.com
A support list for individuals with CHARGE, parents, family members, caregivers, doctors, therapists, or anyone with an interest in or is working with a person who has CHARGE Syndrome. Group Email Addresses Related Link: http://www.chargesyndrome.org Post message: CHARGE@yahoogroups.com Subscribe: CHARGE-subscribe@yahoogroups.com Unsubscribe: CHARGE-unsubscribe@yahoogroups.com
DB-AnswerBag Listserv
MudzyAnswerBug Owner
Hello! Everyone, We have a new group called 'DB-AnswerBag' The description is ask questions on any topic, get real answers from real Deaf-Blind people. Have a question? Ask it. Know an answer? Share it. Interested? Just send a blank message to: DB-AnswerBag+subscribe@googlegroups.com
DB Citizens for Political Action
Website: http://community.lsoft.com/archives/DBACTION.htmlMelanie Bond
List Owner
Ipo56@aol.com
``DB Citizens for Political Action`` or ``DBAction`` is a listserv for adults who are deafblind or those whose combined hearing and vision losses (``DB``) are severe enough to require more comprehensive deafblind services than are being offered that meet their individual needs and enables them to continue living independently. We are a grassroots group whose goal is to learn how to advocate for our needs, how to use the legislative process, how to seek funding sources, and how to find political solutions that will help make life better for all DB Americans. Non-DB people and professionals are also welcome. Together, we can make a difference! To subscribe send a blank messge to: DBACTION-SUBSCRIBE-REQUEST@home.ease.lsoft.com (wait for a confirmation email from LSoft). Location of archives and web interface is: http://community.lsoft.com/archives/DBACTION.html
DB-Personnel-Prep Listserv
This listserv focuses on personnel preparation and development in the field of deaf-blindness. Our goal is to provide a convenient mechanism for those involved in personnel training/personnel prep at colleges and universities to exchange information and ideas about preservice and inservice education of paraprofessionals, beginning special ed and general ed teachers, teacher mentors and teacher leaders. The primary focus will be to share relevant ideas, articles, websites, etc. that can help tenure earning and adjunct faculty to better serve teacher candidates and their current and/or future students with deaf-blindness;To subscribe, send a blank email to db-personnel-prep-subscribe-request@tr.wou.edu or visit http://tr.wou.edu/archives/db-personnel-prep.html
DB-Research List
Website: http://tr.wou.edu/CGI-BIN/WA.CGI?INDEXPublic Discussion List on Deaf-Blind Research. The topic of this list is Deaf-Blind Research. The purpose of this list is to share information, inquiries, ideas and opinions on matters pertaining to Deaf-Blind Research. This list is open to professionals, persons who are deaf-blind, and to their families and friends. This list is maintained by Randy Klumph and is located at Teaching Research Institute. Those who are interested can subscribe to the DB-Research listserv: Send a blank email to DB-RESEARCH-SUBSCRIBE-REQUEST@TR.WOU.EDU
db-Writers Listserv
Matt Friendmatthew.d.friend@gmail.com
There is a new listserv called db-Writers. It is for those who are deaf-blind writers that would like to share with others to get feedback on their writing. Here is the information to subscribe: - Users can subscribe to the list by sending email to db-writers-request@freelists.org with 'subscribe' in the Subject field or by visiting the list page at http://www.freelists.org/list/db-writers
Deaf-Blind Mailing List
The purpose of this list is to share information, inquiries, ideas and opinions on matters pertaining to Deaf-Blindness. To subscribe, send a blank email to deafblnd+subscribe@googlegroups.com
Deaf-Blind Social Mailing List
Website: http://groups.google.com/group/dbsocialDB Social mailing list is for people to relate and chat about anything on their minds. The subscribers are a mix of deaf, deaf-blind, SSPs and interpreters. To subscribe, send a blank email to: dbsocial+subscribe@googlegroups.com
Deafblind Women Chat List
Website: http://groups.google.com/group/db-womenThis list is especially for the needs of women who are deafblind and the challenges they face. Issues discussed may include relationships, fashion, make-up, coping with deafblindness. To subscribe to the list send a blank email to: db-women+subscribe@googlegroups.com
Deafblindsupportgrp Mailing List
Website: http://groups.yahoo.com/group/deafblindsupportgrpJohn Cunniff
johnc@shellworld.net
Deafblindsupportgrp mailing list is a restricted list of group discussions for peer support. Deaf-blind individuals and/or individuals with Usher syndrome are elegible to subscribe. Adults only. Subscribe directly from the web at http://groups.yahoo.com/group/deafblindsupportgrp/join or send a blank email message to: deafblindsupportgrp subscribe@yahoogroups.com. E-mail to the owner: deafblindsupportgrp-owner@yahoogroups.com.
Discussion List on Deaf-Blind Technology
Website: http://groups.google.com/group/dbtechiesDeafblind techies.com is an email discussion list to share and receive support for technology for the deaf-blind. To subscribe, send a blank email to: dbtechies+subscribe@googlegroups.com
Family-2-Family Listserv
Gina Quintana(303) 866-6605
Quintana_g@cde.state.co.us
The Family-2-Family Listserv is an internet listserv designed to connect families living in the western United States who have a child with combined vision and hearing loss. A listserv provides a way for internet users to participate in discussions or receive information from other members on the list. An email message from one member of the list is automatically distributed to all other members of that list. Any family member of a child or youth who is deafblind and lining in one of the following state: AK, AZ, CA, CO, HI, ID, MT, NM, NV, OR, Pacific Trust Territories, UT, WA, WY. The reason for this listserv is to develop a relationship with other families of children who are deafblind; to share ideas, gain support, ask your burning questions, laugh about life's funny calamities and celebrate family successes. You may join by sending an email to Gina Quintana (Quintana_g@cde.state.co.us) with a request to join the Family-2-Family listserv. After joining, you will receive a welcome letter with instruction and guidelines for listserv use, as well as a request to submit a family bio to the listserv.
Florida Deaf-Blind Association
Vicky MaglicocchinoPresident
fldeafblind@yahoogroups.com
People can read about any events and/or information about FDBA meetings, as well as other organizations. To join this listserv send a blank email to fldeafblind-subscribe@yahoogroups.com Contact Information: People may join FDBA by sending an email to Vicky Maglicocchino. There is an annual membership fee.
Great Plains Deaf-Blind List
Website: http://groups.yahoo.com/group/GPDBList/?yguid=10446227GPDBList@yahoogroups.com
GPDB List stands for Great Plains Deaf-Blind List. This list is for general public about Deaf-Blind persons in Missouri (MO), Kansas (KS), Nebraska (NE) and Iowa (IA). Welcome to everyone to discuss and help everyone who can learn and share. DB people who need to meet qualities of lives. Thanks. The co-moderators are Carolyn Sue M. Alflen (MO), Aimee Bader (KS) and Ron Ocken (NE) Group Email Addresses Post message: GPDBList@yahoogroups.com Subscribe: GPDBList-subscribe@yahoogroups.com Unsubscribe: GPDBList-unsubscribe@yahoogroups.com List owner: GPDBList-owner@yahoogroups.com
INTNDB-L:International Letter for Deafblind People
Website: http://www.hicom.net/~oedipus/blist.html#intndbfsdb@fsdb.org
INTNDB-L, an International Letter for Deafblind People, is now available via email from F�reningen Sveriges D�vblinda, the Swedish Deafblind Organization. The International Newsletter has almost 1000 readers, of which 310 are deafblind persons. Most of them do not have computers, but among those who do are many professionals, representatives of various institutions, and members of the World Blind Union. To subscribe to INTNDB-L, send an emessage to: in the body of the emessage, type: SUBSCRIBE INTNDB-L To unsubscribe from INTNDB-L, type: UNSUBSCRIBE INTNDB-L in the body of the emessage, and send it to: To contact the listowner of INTNDB-L, email:
List Name: Intervener-para
Website: http://tinyurl.com/5mr897List Owner/Manager
intervener-para@lists.usu.edu
List Description: The Intervener-Para List supports a Community of Practice around the use of interveners and paraprofessionals with children and youth who are deafblind. It enables members to communicate and network with each other via an electronic mailing list. It is a vehicle for information sharing, problem solving, and discussion. To post a message to all the list members, send email to intervener-para@lists.usu.edu. To contact the owner/manager of this list, send an email to the list owner at: Intervener-para-owner@lists.usu.edu. To see the collection of prior postings to the list, visit the Intervener-para Archives (The current archive is only available to the list members).
National Braille Literacy Mentor Project: brl-help
for information: blmit@afb.orgto subscribe:majordomo@afb.org
(see Summary for instructions).
Frances Mary D'Andrea
blmit@afb.org
Brl-help is an internet discussion group incepted to promote the discussion and sharing of ideas about braille instruction. This mailing list is open to teachers and students of braille and to all people who have specific questions or responses to questions about braille instruction, who can share successful stragegies that have worked in teaching braille, and who wish to discuss resources and materials that are available. Input is solicited from special education and rehabilitation teachers of braille, preschool and general education teachers of children who are blind or visually impaired, and parents and family members of blind individuals. To subscribe to the list, send an e-mail message to majordomo@afb.org. Leave the subject category blank, and place subscribe brl-help" as the text in the body of the message (without quotation marks). You will receive a message that you have been added to the list and be given instructions on how to send messages etc.
NWDEAFBLIND Listserv
Website: http://groups.yahoo.com/group/nwdeafblindDorothy Walt
nwdeafblind-owner@yahoogroups.com
The northwest listserve exists for individuals who are deaf-blind who live in one of the following states: Alaska, Idaho, Oregon or Washington. The purpose of the listserve is to provide a forum for these individuals to share information, resources, events, ideas, and supports. Dorothy Walt will be temporary moderator until another person volunteers to do this. The list is open for continuous dialogue. We ask that each person identify him or herself and that the subject heading identify the topic to be discussed. We also ask that language be easy for everyone to understand, that respect and open mindness be the a top priority. To subscribe, send a blank email to nwdeafblind-subscribe@yahoogroups.com For assistance, contact: nwdeafblind-owner@yahoogroups.com To subscribe using your web browser, go to: http://groups.yahoo.com/group/nwdeafblind
On-Line Forum for Spouses of Deaf-Blind People
Harvey Bond has started a DB-Spousal Support group for spouses and partners of persons who are dea-blind (DB) or hearing-and-visually-impaired (HAVI). Please subscribe to this group by sending a blank e-mail request to:DB-Spousal-Support-subscribe@yahoogroups.com
Parents Helping Parents Online
The Family Resource Center3041 Olcott St.
Santa Clara CA 95054-3222
Fax: (408) 727-0182
Website: http://www.php.com/
(408) 727-5775
info@php.com
PHP Online is an electronic bulletin board system that may be accessed by computer, either dialup or via the World Wide Web. Focus is on health and educational resources, with health and disability fact sheets, directory of conditions and service providers, information on legislative issues, community bulletin boards, and an online interactive chat group available.
Professionals Serving Deaf-Blind Consumers
The PSDBC's mission is to provide a forum for professionals working with and serving deaf-blind consumers to discuss issues and topics related to their professional endeavors. To subscribe, send a blank email to psdbc-subscribe-request@tr.wou.edu
Refsum Discussion List
Website: http://groups.yahoo.com/group/refsums_discussion/Di Hartman
We are people affected by Refsum's Disease, sharing our experiences, coping strategies, dietary tips, etc. with Refsum patients, their families, caregivers, significant others and friends. The purpose of our group is to support, inform, advise and encourage one another as we face the many challenges of living with a rare metabolic disorder.
RID_DBMS LISTSERV
The National Consortium on Deaf-BlindnessThe Teaching Research Institute
Western Oregon University
Monmouth OR 97361
Website: http://tinyurl.com/5xn2w4
Mala Poe
rid_dbms-request@tr.wou.edu
RID_DBMS@TR.WOU.EDU (Registry of Interpreters for the Deaf: Deaf-Blind Member Section) We are a special interest group of RID interpreters who work with Deaf-Blind individuals to provide a relationship-building forum to share information, education, and concerns in our field. This group is open to all RID Deaf-Blind interpreters and Deaf-Blind Individuals interested in the field of interpreting. This list is maintained by Mala Poe and is located at Teaching Research. Please contact Mala to subscribe to this listserv group.
RP Fresh Sight
RPLIST is an Internet forum for discussion, questions and opinions related to retinal degeneration. To subscribe, send a blank message to: RP_Fresh_Sight-subscribe@yahoogroups.com or contact RP_Fresh_Sight-owner@yahoogroups.com for assistance.
Rubella Discussion List (HKNC_Rubella)
Website: http://tr.wou.edu/CGI-BIN/WA.CGI?A0=HKNC_RUBELLANancy ODonnell
nancy.odonnell@hknc.org
The Rubella Discussion List (HKNC_Rubella) is a vehicle for parents, consumers, and professionals to share information about any aspect of rubella and to provide support to those living or working with someone who has congenital rubella syndrome. To subscribe, go to:http://tr.wou.edu/CGI-BIN/WA.CGI?A0=HKNC_RUBELLA or contact Nancy O'Donnell (nancy.odonnell@hknc.org).
Spanish Deaf-Blind Listserv
Website: http://www.rediris.es/rediris/index.html.enRicard López
List Owner
talking3@teleline.es
This list is entirely in Spanish and is for Deafblind people, families, volunteers, professionals, investigators and educators. Hosted in Spain by RedIris, a Spanish academic and investigation network. To subscribe to this list, send the following in the body of an e-mail message. SUBSCRIBE sordoceguera firstname lastname Send to listserv@listserv.rediris.es For assistance, contact the owner, Ricard López talking3@teleline.es
State DB Listserv
Website: http://tr.wou.edu/CGI-BIN/WA.CGI?INDEXState DB is a private discussion group for directors of state deaf-blind projects Subscribe send a blank email message to: state-db-subscribe-request@TR.WOU.EDU.
Usher Syndrome Mailing List
Usher Syndrome Mailing List - Ushers List is an internet forum for people with Usher, their parents, friends, spouses, and service providers. To subscribe, visit: http://www.freelists.org/archive/usher-l
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