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For Families

Seven photos of families together.

Family members are the most important people on the educational team and in the life of a child or youth with deaf-blindness.

They are the one consistent presence as children move from early intervention to school, and then transition to adult life. Educational settings change and practitioners come and go, but the family is always there. In this section of the website, you will find resources to help you:

  • Connect to agencies and organizations
  • Learn about deaf-blindness and key topics for families
  • Access family stories
  • Find events
Figures of two adults and four children.

Services and Organizations

Reaching out to helpful people and places is essential for children with deaf-blindness and their families. A range of services are available that provide information, referrals, services, and opportunities to interact with other families. 

Connect to services and organizations that can help your child and family →

Eight children in a field with trees in the distance. Six of the children are pulling a boy on a slide. The eighth child is pushing the sled.

Get to know your state deaf-blind project

If you are a family member of a child with deaf-blindness and have not yet contacted your state deaf-blind project, you should do so as soon as possible. The types of services offered vary from state to state, but typically include resources, guidance, and annual workshops or other events. Most state deaf-blind projects include a staff member in the role of family engagement coordinator who works directly with families.

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Learning Resources

Families report a high need for information to improve their understanding of deaf-blindness (e.g., communication, impact of vision and hearing loss on learning), as well as the knowledge and skills they need to partner with educators and advocate for their childrens' needs (NCDB, 2017). Sorting through information on the internet can be overwhelming, however, so we've organized a selection of high-quality information on this website—information about deaf-blindness, key topics for families, and family stories.

Go to learning resources →

A young boy in a classroom reading a children's book. He is wearing glasses and a hat.

Family Events

There are numerous opportunities throughout the year to participate in training, webinars, and other events. We keep track of them on a calendar just for families.