May Monthly Update
New Idaho Project Podcast Series
An exciting new podcast series on deaf-blindness has launched, which provides training and consultation to service providers and families of children and young adults who have a combined vision and hearing loss. In the series, you’ll hear from some of the world’s experts in the field of deaf-blindness, including Maurice Belote, Tanni Anthony, Phil Schweigert, and Robbie Blaha. The first episode features David Brown. The series is hosted by Dr. Robin Greenfield, associate director of the Center on Disabilities and Human Development at the University of Idaho and director of the Idaho Project for Children and Youth with Deaf-Blindness.
CHARGE Syndrome Foundation Updates
The CHARGE Syndrome Foundation is providing assistance to families who are traveling for medical visits. Check out the CHARGE website for more information on the Medical Travel Assistance Program.
The Foundation also provides direct support and resources for new families as part of its Family Assistance Program. This includes welcome packages for families of children recently diagnosed with CHARGE syndrome.
Updated Info Topic on Transition to Preschool
Successful transitioning takes time and considerable planning, but when done right, builds relationships and leads to positive outcomes. NCDB’s newly updated “Transition from Early Intervention to Preschool” info topic, in the Educational Practices section of our website, provides critical information on the steps and strategies involved in an often challenging transition for children and families.
Save the Date: Transition Institute
The Iowa and Nebraska Deaf-Blind Projects are hosting their annual Midwest Transition Institute along with eight other state deaf-blind projects. The event will be held on Zoom, June 6-27, 2021. For more details, check the link below.
Child Count Due May 10th
The Deaf-Blind Child Count is a point-in-time snapshot that reflects individuals identified and eligible for services from state deaf-blind projects on December 1 of the current reporting period (December 2, 2019–December 1, 2020).
New Family Key Topic
Making decisions about assistive technology can be overwhelming for many families. We encourage you to share May’s Key Topic for Families on “Understanding Assistive Technology” with families and service providers. It provides links to resources to help families better understand and make important decisions about technology that can help improve their child’s development and independence.
Brum, C., Bruce, S., & Ivy, S. (2021). Strategies for teaching tactile tangible symbol systems: Case study on a learner with deafblindness. Visual Impairment and Deafblind Education Quarterly, 66(2), 48-56.
Clark, J., Khan, W., van der Spek, N. (2021). Ophthalmological screening in children who are deaf or hard of hearing. Irish Medical Journal, 114(3), 292-299.
Pancsofar, N., Petroff, J. G., & Carlani, J. (2021).Collaborative strategies for supporting the well-being of fathers of young children with complex disabilities. Young Exceptional Children (first published April 22, 2021).
Russell, C., & Willis, J. (2021). The augmentative and alternative communication (AAC)/cortical visual impairment (CVI) matrix: Unique considerations for integrated assessment and intervention. Visual Impairment and Deafblind Education Quarterly, 66(2), 30-37.
On April 28, NCDB partnered with ECTA, ITCA, and DaSy to present a webinar to Part C coordinators and other EI providers. It included an overview of the Deaf-Blind TA Network and a discussion of opportunities for inter-agency collaboration. The event was well received, and the webinar and presentation materials are now posted on the ECTA website (scroll down to "Past Webinars"). Consider reaching out to Part C providers in your state to see if they attended, and if not, share this information with them.