Family-to-Family Communities (F2FC)
Family-to-Family Communities (F2FC) brings families together to connect, share information and resources, and offer support to one another in the journey of supporting their deafblind family members.
Each small group is guided by trained facilitators and meets once per month for 60 or 90 minutes via Zoom or phone. Topics are chosen by the group and include structured conversation and open sharing. Regular participation is vital to the group, and connection between meetings is encouraged!
F2FC registration is open until September 1, 2025.
Facilitators will contact participants in August; monthly meetings will be Sept 2025 – May 2026. Descriptions below include sample topics. [PDF Flyer]
Questions? contact carol.stein@uga.edu or your state deafblind project.
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2025-2026 Family-to-Family Communities (adjust for time zones) |
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Self-Care Group: 1st Thursday/month at 7pm ET; share your experiences, find encouragement, and learn self-care tips to help you and your family thrive; Facilitators- Abby Denis & Kim Scheil |
| Families with Members who have Peroxisomal Disorders: 3rd Monday/month at 8:30pm ET; empowering parents, building community, advocacy, education, connection, and life balance; Facilitators- Krista Olsen & Katie Sacra |
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Families with Members who have CHARGE: Last Thursday/month at 7:30pm ET; unique needs and services, building a network of support, family dynamics, planning for the future; Facilitators- Brandy Johnson & Katrina Michel |
| Families with Members who have Usher syndrome: 3rd Wednesday/month at 8pm ET; support for family members, making connections, and sharing resources; Facilitators- Amanda Campbell & Nicole Schut |
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Adult Life (age 22+): Last Wednesday/month at 7pm ET; for family members of adults who are deafblind; adult life systems, resources, and supports; Facilitators- Patti McGowan & Sheri Stanger |
| Families with Children who have Complex Needs: 2nd Thursday/month at 7pm ET (60 min); health care, support providers, education, self-care, balancing family life; Facilitators- Kristi Arsenault, Michelle John, & Fabiola Spinks |
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Dream BIG for Life beyond High School: 2nd Tuesday/month at 7pm ET; for families of youth ages 14-22, planning for life after high school that is meaningful, purposeful, and enjoyable; Facilitators- Hex Lightfoot & Nancy Ann Sherman |
| Grandparents and Extended Family: 3rd Wednesday/month at 7pm ET; loved ones share insights about the complexities of children with peroxisomal disorders or other diagnoses related to deafblindness; Facilitators- Chris & Tony DiLeo |
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Spanish-speaking Families: 1st Thursday/month at 7:30pm ET; education, relationships, self-care, and leadership; Facilitators- Josefina Gonzales & Doris Tellado; registration for this group ONLY https://tinyurl.com/F2FC2025sp |
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Dads of Deafblind Children: 1st Tuesday/month at 8pm ET; fathers connect and share their experiences raising deafblind children while balancing the rest of life; Facilitators- Mark Helvie & Mark Potts |