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Posted Jan 25, 2017|Archived Webinar

2017 National Webinar: Starting a National Dialogue on Finding Children with Usher Syndrome

Recorded on January 25, 2017


Nancy O'Donnell, Director of the USH Trust Registry provided an overview of the mission of the organization, the types of support they provide to families of children with UsherSyndrome, and shared information about their main product, a registry known as the USH Trust.

Webinar Resources

Associated Files

Presentation Files 

Usher Syndrome Coalition 2017

More Information 

USH Flyer 

Presenter Information

Nancy O'Donnell 
Director of the USH Trust Registry