Meet Soliz and Camila Magdelano
This families matter story profiles the Magdelano family: Soliz (age eight); Camila (age seven); their parents, Heather Joy and André; and their dog, Sammy. Soliz and Camila have combined vision and hearing loss due to Wolf-Hirschhorn syndrome.
In the summer of 2015, the family took a road trip from their home in Arizona to California, where they went camping with extended family, including their Grandma Joleen and Aunt Amy. Join them in their adventure as they are immersed in sensory experiences and new environments, and find out how they communicate, learn, get around, and adjust to a variety of situations. In the box below each video are resources where you can learn more about some of the topics covered.
Meet Soliz and Camila
Learn more . . .
Wolf-Hirschhorn Syndrome
From the Genetics Home Reference website, National Library of Medicine.
Children Who Are Deaf-Blind
From National Center on Deaf-Blindness.
Communication
Learn more . . .
Interaction & Bonding
From the Communication for Children with Deafblindness, or Visual and Multiple Impairments website, Texas School for the Blind and Visually Impaired.
Total Communication
From Perkins School for the Blind.
Literacy
Learn more . . .
Early Emergent Literacy
From the Literacy for Children with Combined Vision and Hearing Loss website, National Center on Deaf-Blindness.
Visual Adaptations
A fact sheet from California Deafblind Services.
Movement
Learn more . . .
Adventure Walks: Helping Your Child Who is Blind Move Around Outdoors
From the WonderBaby website, Perkins School for the Blind.
What is Aquatic Therapy?
From the WonderBaby website, Perkins School for the Blind.
Transition
Learn more...
Planning Family Outings
A fact sheet from California Deafblind Services.
Making Changes in Routines
A fact sheet from California Deafblind Services.
Empowerment
Learn more...
Oral Desensitisation
A guide for parents from the National Health Service in Wales.
The Importance of Having 'Good Taste'
An article from DbI Review, Deafblind International.
Teaming
Learn more . . .
10 Tips from the Parenting Trenches
A one-pager from California Deafblind Services.
Integrating Your Child or Youth Who Is Deaf-Blind into Groups: Strategies for Families and Caregivers
A fact sheet from California Deafblind Services.
Meet Soliz and Camila
Learn more . . .
Wolf-Hirschhorn Syndrome
From the Genetics Home Reference website, National Library of Medicine.
Children Who Are Deaf-Blind
From National Center on Deaf-Blindness.
Communication
Learn more . . .
Interaction & Bonding
From the Communication for Children with Deafblindness, or Visual and Multiple Impairments website, Texas School for the Blind and Visually Impaired.
Total Communication
From Perkins School for the Blind.
Literacy
Learn more . . .
Early Emergent Literacy
From the Literacy for Children with Combined Vision and Hearing Loss website, National Center on Deaf-Blindness.
Visual Adaptations
A fact sheet from California Deafblind Services.
Movement
Learn more . . .
Adventure Walks: Helping Your Child Who is Blind Move Around Outdoors
From the WonderBaby website, Perkins School for the Blind.
What is Aquatic Therapy?
From the WonderBaby website, Perkins School for the Blind.
Transition
Learn more...
Planning Family Outings
A fact sheet from California Deafblind Services.
Making Changes in Routines
A fact sheet from California Deafblind Services.
Empowerment
Learn more...
Oral Desensitisation
A guide for parents from the National Health Service in Wales.
The Importance of Having 'Good Taste'
An article from DbI Review, Deafblind International.
Teaming
Learn more . . .
10 Tips from the Parenting Trenches
A one-pager from California Deafblind Services.
Integrating Your Child or Youth Who Is Deaf-Blind into Groups: Strategies for Families and Caregivers
A fact sheet from California Deafblind Services.